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Lipreading Awareness Week 2019

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Lipreading Awareness Week 2019

Runs from the 9th to the 15th of September 2019

A brief history of Lipreading

Did you know that the first lip-reading course was developed by the City Lit in London, back in 1919. This was as a direct result of returning World War 1 veterans. Many men had been exposed to loud noise on the battlefield and had subsequently acquired a hearing loss. However upon their return to the UK, a great number of men who had Noise Induced hearing loss were seen as malingerers who were exaggerating! We now know that the shells and artillery noise that soldiers were exposed to regularly created a noise of 140 decibels or higher. But ear protection was not given great consideration. In fact ear plugs were considered a barrier to soldiers being able to hear orders or warnings from their colleagues or superior officers!

The second world war also produced a great number of deafened veterans. Subsequently the Royal National Institute for Deaf People, the charity now known as Action on Hearing Loss, developed their teaching programme. Classes on how to lip-read were in demand as was the need to train up the necessary teachers!

Lipreading teachers in 2019

Currently there are two places in England where you can train to become a teacher of lip-reading. The City Lit in London and in Manchester through the Centre for Deaf Studies. Training sometimes runs in Scotland and Wales, depending upon demand. When you undertake training in becoming a teacher of lipreading you learn all about the theory of how speech sounds are made, as well as common confusions in speech, tactics to improve communication and strategies to support people manage their hearing loss better! If you are looking for a teacher of lip-reading you should look for someone who is registered with ATLA, the Association of Teachers of Lip-reading to Adults.

Myths about Lipreading

Sometimes people say “but everyone lipreads a little – you don’t need to take a class”. And it’s true, most people do lipread a little. However a lip-reading class can help you improve this natural skill. But then people also ask if they take a class – how long does it take for them to become an expert lip-reader? Sadly, there is no such thing as an expert lip-reader! Yes, you may have watched crime fiction programmes and the hero detective watches the CCTV camera footage. And having watched it one or two times, despite the picture being poorly lit, and the suspect being far away, and the footage is a bit grainy…the detective reads their lips and solves the case. But, lipreading accurately in such a scenario is highly unlikely. Successful lipreading is more than just watching the mouth, jaws and lip movements.

What does lipreading involve?

Successful lipreading also requires you to know the context. You have to fill in gaps, as only 30% of spoken English is visible on the mouth. And you have to be certain that the person you are lip-reading is speaking English – which may not be the case in the crime fiction programme! Lipreading requires a blend of a number of skills and appropriate elements.

The benefits of lipreading

There has been significant amounts of research which suggest a person who has a hearing loss, when provided with hearing aids and lip-reading training, can reduce their personal risk of the onset of dementia. And we are social creatures. When we reduce our ability to take part in communication we become isolated, depressed and our mental wellbeing can suffer. Lipreading classes are a relaxed social event where learning is fun. And the skills you acquire can assist in regaining confidence in communicating with friends, loved ones and colleagues. Why would you delay?

 

 


Work Experience

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Work experience at Indigo Access

Hi I’m Anaisa Harney, I study at John Madejski Academy, and this is my account of the week’s work experience at Indigo Access.

Monday 9/7/18

First I observed a training session. This showed me how much work is required to train a worker through a small business. I was surprised at the amount of planning a preparation needed to make a training plan to teach the workers how to be a successful comm guide. I then went on a visit to a deaf client who needed help with understanding her post. This was the first time I had properly met a deaf person. I found it very interesting how the client could communicate using BSL so easily and understood the letters without being able to read them. Finally, I help do some finance. Doing this showed me that a small business requires many different roles that take a lot of time and expertise to complete.

Tuesday 10/7/18

First I observed and took part in a lip reading lesson. When I first turned up I thought that lip reading would be very easy to understand and that everyone can do it. I was surprised when the class started as I found it difficult understanding what was being said as the majority of the words looked very similar. Next I went as observed supported communication. I was very surprised at the different type of communication required from Monday as the client did not fully understand sign language. This showed me that not all deaf people are the same and that they all have different ways of communicating.

Wednesday 11/7/18

First I observed a meeting with Wokingham Borough Council. This was very interesting as it showed me all the different types of companies that help support a variety of people. Although the meeting was less interesting than the previous days it was very important. Next I done some admin work. This included shredding a load of documents. This was very important as it has to be done to get rid of any documents that have confidential information on.

Thursday 12/7/18

First I observed a deaf/ blind client being guided. This surprised me as I was not aware how much information the client needed to know whilst they were being guided. Although the client was deaf and blind they could still communicate by using special equipment. Having a comm guide allowed the client to go out and do what they wanted to do without any restrictions. From this I leant that that it is important that the client knows what type of surface they are walking on or if the type of surface is going to change. They also need to know what is approaching them e.g. a door or a slope.

I then completed more admin work as there was a lot to do.

Friday 13/7/18

First I observed a supervision session. This was to check in with a worker to see how their work has been going and to see if they had any problems. I then observed communication support. The client need assistance booking appointments over the phone as they have hearing difficulties. I was surprised when I met the client as it was not obvious that they were deaf as they could have a conversation with me. It was only noticeable when they were trying to understand what was being said on the phone.

In conclusion!

This week of work experience not only showed me the range of deaf/blind people and how they communicate but it showed me how a small business runs. It showed me all the small but important aspect of running a business such as training, supervision, meeting, finance, admin and then actually communicating with deaf/blind people. I was shocked by how much work is required to keep the business running successfully and safely.


General Data Protection Regulations (GDPR)

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GDPR – Our Privacy statement for Customers

Indigo Access Ltd collects your personal data.
  • What data?

This includes information such as your name, address, date of birth, ethnicity, religion, disability, health conditions.

  • Why do we use it?

We use this information so we can provide you with a service. This might be an assessment of your needs, or it might be a specialist support worker or training event.

  • Our legal basis for processing this information is

“Processing is necessary for the performance of a contract to which the data subject is party or in order to take steps at the request of the data subject prior to entering into a contract”

  • Sharing data

Information will be shared with third parties for the purposes of our companies accounting needs, with purchasing councils or with the purpose of arranging equipment following an assessment. Indigo Access Ltd have a separate Consent to Share information form.

  • Storing data

Data is stored on cloud based systems, which is only accessible to our workforce through a password protected and invitation only basis.

Your telephone number might be stored on your worker’s mobile phone. This is pin protected and your identification is anonymised by the use of initials only.

  • Keeping your data

Indigo Access Ltd will only retain data about you whilst you are a customer of ours. We will delete all information once our contract has ceased, either with yourself directly or with a purchasing council.

Indigo Access Ltd will keep financial records such as Request for Service Forms, Purchase Orders, Invoices and Remittances for up to 7 years. Financial records will be shared with our Accountant for accounting purposes.

  • Under the GDPR you have a number of rights:
  1. The right to be informed
  2. The right of access
  3. The right to rectification
  4. The right to erasure
  5. The right to restrict processing
  6. The right to data portability
  7. The right to object
  8. The right not to be subject to automated decision making including profiling
  • Subject access request

If you require a subject access request please contact hello@indigoaccess.co.uk or write to us. Josie Fray will handle this request within a working month. We will put right any data that is incorrect.

  • If mistakes happen

If your personal data is breached, Indigo Access will undertake an investigation.

We will report breaches as required to the ICO, the individual and the purchasing local authority.

We will maintain a spreadsheet to record what went wrong and how we put it right.


The Equality Act 2010

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The Equality Act 2010

It’s been 8 years since the Equality Act became law. But it seems that the interpretation of this law still befuddles some people. This has been highlighted recently in the case of Sally Reynolds and the Little Mix Concert. Sally, is a British Sign Language user and is Deaf. Her daughter isn’t deaf. And her daughter wanted to go to the Little Mix concert. In a nutshell, Sally requested that the concert provide a BSL to English Sign Language Interpreter so that she could have access to the concert. After the concert organisers had refused her request, a court injunction was sought.

This step resulted in Sally being provided with a BSL Interpreter for the Little Mix part of the concert. But not the two warm up acts that came before Little Mix. Subsequently Sally has taken the unprecedented step in issuing legal proceedings against the concert organisers for failure to provide reasonable adjustments.

You can read the BBC report here: http://www.bbc.co.uk/news/education-42776454

The outcry

There has been much commenting on this case. The Daily Mail comments are full of outrage “Why should the venue provide an interpreter at great expense just for you? You can lip read. Get over it.” and “What a load of cr*p how on earth is an interpreter going to keep up with someone singing,perhaps they also asked for the song to be sung slowly, if it goes to court I hope the mother not only loses and pays all legal costs”, for example.

Read more, if you want to but try not to get too angry: http://www.dailymail.co.uk/news/article-5308059/Deaf-mother-sues-Little-Mix-promoter-sign-language-row.html#ixzz55lHdgUxP

The response

That little thing called the Equality Act. I know its only been around 8 years. But it clearly states that providers of goods and services must take reasonable adjustments to make sure a person with a disability receive the same services, as far as is possible, to that of a non disabled person. The Equality Act even calls these adjustments “reasonable adjustments” to take into account the organisations size, practicality, the disability. Moreover the Equality Act makes it clear that sometimes purveyors of goods and services need to provide an extra aid or service. This is an auxiliary aid. Guess what a BSL Interpreter is? That’s right! An auxiliary aid.

So, lets just re-cap. Sally bought tickets to a concert, because she is taking her daughter there. She would like to have full access to the concert that she is attending with her daughter. The request for a BSL Interpreter is entirely legal. Because without one she is unable to access the lyrics to the songs. This places her at a disadvantage to other concert go-ers. By only having an Interpreter for the Little Mix part of the concert, this effectively means Sally only has access to 1/3rd of the acts. This again, is not equal to other concert goers and places her at a clear disadvantage. Which the providers already know how to overcome because they have provided an Interpreter for the Little Mix part of the concert.

Responding to the comments

Why should the venue provide an interpreter just for you? – Well, it is the Law (see the Equality Act).

You can Lip-read: Well, only 30% of spoken English is visible on the mouth. Lipreading is a blend of other skills, including knowing the context and topic, so unless Sally knew all of the acts songs off by heart, this would be impossible. In addition, lipreading works well when the person doesn’t move about, if only one person is speaking at anyone time and that the light is in the speakers face. Oh, and you have to be quite close to the speaker too. So, no, lipreading isn’t going to cut it here.

How is an Interpreter going to keep up with a singer: Hmmm, BSL – English Interpreters who undertake performance Interpretation are highly trained to interpret and will put in hours of preparation to ensure they have been able to translate the song from English into British Sign Language. A quick look on Youtube has countless examples of people (some of whom are not qualified BSL – English Interpreters) signing along to songs. And, what a surprise, these songs aren’t slowed down.

The Equality Act and what it means for the wider Deaf community

Taking this issue to court will set a legal precedent. As yet no-one has tested the Equality Act in this area. If Sally wins the case, then it should make it much clearer for people with a sensory need to make their needs known. And for suppliers of good and services to meet the reasonable adjustment. This could mean more audio described plays, additional subtitling at concerts, BSL – English Interpreters being booked.

We should celebrate the courage of Sally Reynolds for taking this step. Rebecca Halliday did  a courageous thing in 1997 (and changed the way DLA was awarded to people who were Deaf as well as people who were Blind). Only by using the law can people hope to redress the innate discrimination that currently abounds.


Surviving the holidays with a hearing loss

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Hearing loss and the holidays

With the holiday season in full swing it is often a difficult time for people with a hearing loss. Meals out in noisy restaurants, group conversations and the twinkly lights can make communication that little bit harder.

So what are our top tips for surviving the festive period?

If you have a hearing loss

Sit at the table where you can see most of the other guests. A round table is best. But if you are on a rectangular table try for the middle. And I don’t mean sitting in the middle of the table, that’s where the turkey should be.

Stand or sit with your back to the wall. Conversations and noise can’t escape as easily.

Wear your hearing aids and glasses. Remember to have spare batteries.

Move to where there is better light. The fairy lights might look nice but it creates shadows which can impact on how much you will be able to see!

Let people know. If you have a preferred side ask them to move to it. If you haven’t understood as them to repeat, rephrase or write it down.

Don’t drink too much alcohol. (Boo – hiss) I know, you might relax a little more, which can help with lipreading. Too much and your residual hearing can be affected. And it’s harder to make sense of conversations and fill in the gaps when your brain is a bit under the influence.

If you know someone with a hearing loss

No-one wants to be left out. So get the person’s attention. Give eye contact. Introduce the topic by saying “we are talking about this ….”

If they haven’t understood repeat, rephrase and write it down.

Don’t drink too much alcohol. (Boo – hiss again). Lipreading becomes more difficult if you are slurring your words.

Ask the person if there is anything you can do to make communication easier. Is the lighting too dim? Are you talking too quickly?

Be patient.

Wishing you all a happy holidays!

Indigo Access will be closed from 5pm on the 22nd of December through to 9am on the 2nd of January.

We wish all of our customers and colleagues a very Merry Christmas and a Happy New Year.

 


Careers event at Furze Platt Senior school

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A successful Careers event

Elaine and I attended Furze Platt Senior School’s careers event on Thursday 23rd of November. A large number of Universities, Colleges and Employers were on hand. And a good number of year 9-11’s attended with their parents.

Now I had to admit, as a previous student of FP seniors, the careers advice I received certainly didn’t include working with Deaf people. Despite having passed CACDP Level 1 when I was 14, the school didn’t really nurture this interest. Which is why it is awesome to be able to go back and widen the children’s perspectives on their potential employment options!

Interactive stall

Armed with plenty of new leaflets and a big box of Cadbury’s heroes, Elaine and I sat up our stall. We took along our simi specs. These have different examples of sight loss. And we persuaded the children to try them on. We also had ear defenders. Using the simi specs of cataracts and macular degeneration proved popular. Most of the children, and a number of their parents, knew of older family members who had these sight conditions. We asked the pupils what they could and couldn’t see with these glasses on. With the macular degeneration glasses most children said they would find it difficult to leave their house, to see who they were talking to and everyday tasks such as reading would be difficult.

Then we asked them to add the ear defenders. A great number of our stall attendees at this point went rigid. “It’s horrible”, “I feel underwater and isolated”, “It’s quite scary” were a few of the comments. Some of the braver ones were willing to be guided around a very crowded library.

Future options

This evening was a great way to insert a small bit of sensory awareness training. But the aim of the evening was to provide information about the careers that are available to school leavers. As followers of Indigo Access will know, we are often looking for new staff, because of the demand on our service. But we know that as well as Communicator Guides and Communication Support Workers, there is a raft of jobs connected to Sensory needs.

So once we had captured their attention with the experiences of dual sensory loss, Elaine and I were able to tell them about the career pathways available. Social Work, Rehabilitation for people with a visual impairment, BSL-English Interpreters, Teaching Lip-reading. Moreover we also promoted the colleges and Universities that provide specialist degrees and diplomas. There is a surprising number of careers when you look into sensory needs!

We look forward to returning to next years careers event. And we’ll definitely think on how to make our stall even more interactive and fun for the next round!

 

 


Lipreading – an introduction!

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Lipreading introduction

According to Action on Hearing Loss 1 in 6 people in the UK have some form of hearing loss.

Here are our top facts about Lipreading in the UK
  • We all lipread a little bit

Most of us use lipreading skills without realising it. Being able to see someone talking helps us fill in the gaps if we can’t hear due to background noise.

  • It isn’t all about the mouth

Lipreading clearly does require the person to watch a speakers mouth. But successful lipreading also involves watching the tongue and jaw movements, follow rhythm and stress, watch facial expressions and body posture. Knowing the subject, being aware of context and using residual hearing also adds to a successful lipreading experience.

  • Only 30% of spoken English is visible on the mouth

A lot of our speech sounds made inside the mouth or at the back of the throat. You can mistake visible lipshapes too. The visible speechsound of “Fuh” (placing the top teeth on the bottom lip) looks the same as a “Vuh”. Van and Fan will look the same on the mouth.

  • Learning to lipread won’t help you become a spy!

There are many things that impact on a person’s ability to lipread another person. Accents, mumbling, speaking in a different language, facial hair, lighting all impact on the clarity. In addition being tired or hungry can reduce your ability to concentrate.

  • Learning lipreading doesn’t hinder the success of a cochlear implant

Previously cochlear implantees were advised to only build up their access to sounds through their implant. However recent research shows that using lipreading can assist in better hearing. (https://www.myscience.org.uk/news/2017/brain_responses_to_lip_reading_can_benefit_cochlear_implant_users-2017-nottingham)

Indigo Access offer private 10 week classes. Contact hello@indigoaccess.co.uk for more information!

 


Restaurant awards and noisy eateries

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The Good Food Guide 2018

No, you haven’t stumbled upon a different blog. But it started in an article in the Guardian on the 17th of August. It began by celebrating the Cornish restaurant Outlaws. This seafood restaurant is now number one in the UK according to the Good Food Guide. Previously it had been L’Enclume in Cumbria. Although partial to a nice prawn and scallop or two, I have been to neither place. And I suspect the waiting list now to get into either will be too long and deter me from trying.

However, what piqued my interest wasn’t so much the praise heaped upon the Port Isaac eatery, but the second part of the article.

Restaurant awards and noisy eateries

Aside from the restaurant awards, it also highlighted noisy eateries. According to this mainstream report “the guide says readers have complained in unprecedented numbers that UK restaurants are getting noisier. With music “played at Glastonbury force” increasingly spoiling the dining experience.” (https://www.theguardian.com/lifeandstyle/2017/aug/17/nathan-outlaw-named-best-uk-restaurant-in-good-food-guide)

Since 2016 Action on Hearing Loss have been running a campaign. This campaign is called the Speak Easy campaign. I wonder if you have heard of it? Basically this charity is asking restaurants, pubs and cafes to reduce the noise in their establishments. After all, if you have a hearing loss and the music is blaring, then your hearing aids will amplify this noise. It increases your difficulty in communicating with your friends and family, colleagues and the staff. Socialising becomes increasingly stressful. And then people withdraw from these events. So you would think Pubs, Cafes and Restaurants would want to have repeat custom rather than driving people away. The power of the pound and all that!

Noisy eateries are not new news to hearing aid users. Many of my lipreading students complain of places that are noisy. Wooden floors and bare tables bounce the sound around even more.

What can I do about the noise? 

For more information and to get involved go to https://www.actiononhearingloss.org.uk/get-involved/campaign/speak-easy/speak-easy-campaign-pack.aspx

Leave a review! Facebook, Twitter, Google, Trip Advisor feedback are all powerful social media routes you can take. This is useful if you have tried to explain your position to an uninterested manager.

10 million people in the UK have a hearing loss, that’s a lot of customers who are affected.


Complaints about our service

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Complaints about our service

Indigo Access welcomes feedback from our customers. We know that at the heart of great customer service is being able to put right what we have got wrong. Receiving a complaint can help us improve our services. And we appreciate it can take a huge effort for people to complain.

But often people don’t know how or where to complain. This is how to do it! The aim is to help you know where to go. When we have let you down. This blog is about Indigo Access’s complaints procedure.

To make things simple we have a 3 stage process.

Stage 1 Complaints

You tell your worker that you are unhappy about an aspect of our service no later than one month from the date of the event.

The worker will try and put right what they can.

Stage 2 Complaints

The response from the worker in Stage 1 has not fixed anything and you are still unhappy. As such we will offer you support from the company so you can contact the Director of Indigo Access. You can put your complaint in writing, on DVD or alternatively made in person.

The Director will undertake an investigation. And completes this within 14 days of the initial dispute.

The Director will email you and let you know the progress of the investigation.

Reparations will be offered when your complaint is upheld. This could be by means of an apology or by providing a service that you should have had. In addition we will review our procedures to make sure this event won’t happen again.

Stage 3 Complaints

If we cannot resolve your complaint, Indigo Access will refer you to the Local Government Ombudsman.

As a result this will complete our process, and will occur within 28 days of the initial dispute.


Deafblind Specialist Assessment

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The Deafblind Specialist Assessment – getting you the right support

It is the end of Deafblind Awareness week. For some people in the community this means that they have become more aware of their rights as deafblind people. However, it appears that there is an awfully long way to go before deafblind people get the services they need.

A starting point in England is to ask your local authority for a deafblind specialist assessment.

There is specific legislation that applies to people who have a combined sight and hearing loss. This should make the process simple. However, there are occasions when the local authority may not be up to speed on such matters.

This is information to support Advocates of people with dual sensory loss, when challenging decisions made by the local authority.

Deafblind Legislation

As an adult who has combined sight and hearing loss which impacts on access to information, communication and mobility, the overarching piece of legislation that applies in the Care Act 2014. More specifically the Care and Support for Deafblind Children and Adults Policy Guidance as issued under section 78 of the Care Act 2014.

Local authorities must follow this guidance unless they can demonstrate legally sound reasons for not doing so.

In the Executive summary it states local authorities must:

  • ensure that when an assessment of needs for care and support is carried out, this is done by a person or team that has specific training and expertise relating to Deafblind persons – in particular to assess the need for communication, one-to-one human contact, social interaction and emotional wellbeing, support with mobility assistive technology and habilitation/rehabilitation;

This is further explained in the following sections:

  1. “Any person carrying out an assessment must be appropriately trained”
  2. “Where the assessment relates to an adult who is Deafblind, it must be carried out by an assessor with specific training and expertise relating to those who are Deafblind”
  3. “Training should be of Qualifications and Credit Framework or the Open College Network level 3, or above where needs are higher or more complex”
What training qualifications?

According to the Social Care Institute for Excellence (SCIE) (http://www.scie.org.uk/training/careact/assessment-eligibility/specialist-deafblind-assessor3.asp) an OCN level 3 qualification meets the minimum standard for assessing people who have non complex deafblindness. Furthermore they qualify this statement with “primarily aimed at local authority social care staff responsible for the identification and assessment of older people with age-related deafblindness”.

An assessment completed by someone without the necessary expertise should warrant a complaint to the local authority.

Getting the right support

The executive summary makes it clear that local authorities must:

  • ensure services provided to Deafblind people are appropriate, recognising that they may not necessarily be able to benefit from mainstream services or those services aimed primarily at blind people or deaf people who are able to rely on their other senses;

Again, this is clarified in part 36 of the guidance.

Moreover in point 38. “Local authorities will want to ensure that they are able to access the services of specifically trained one-to-one support workers (eg: communicator guides, intevenors, language service professionals) for adults…for those people they assess as requiring one”

Challenge the local authority on this.  If they have said you would benefit from a communicator guide, make sure you are provided with one.

I need support to challenge a decision

Unfortunately we are unable to act as an advocate. Get a copy of your deafblind specialist assessment. Get a copy of the local authority decision process. Then use an advocacy service.  Follow the local authority complaints procedure. Contact the Local Government and Social Care Ombudsman, if you are still unhappy (http://www.lgo.org.uk/adult-social-care).